23andMe, SaysBrad 2013, and screw the FDA

Dealing with medical problems and disability, I missed out on a lot of things this year. It's easy to just get upset about that — and everything else going on in the world — it's extremely easy to forget how amazing life is and how much technology has changed everything, for almost everyone.

Sometimes, it seems like the Internet is just full of complaints. And cats. Much of it is superfluous, and I've spent some time on this blog trying to point that out to people. But some complaints are valid, and the Internet has given a voice to many who would otherwise remain silent.

I mention this, because the FDA has blocked 23andMe, a DNA analysis company, from releasing medical information related to DNA as part of their $99 mail-order test kit.

Personally, this genetic information could be very valuable; it could tell me if I'm a carrier for the condition that killed my two brothers, why my nervous system responds the way it does and how best to treat my chronic pain, muscle spasms and disability.

I found out about 23andMe because of their Black Friday sale and ordered a kit, only to find out the day the kits arrived, that 23andMe would only be able to supply ancestry related information.

Basically, the FDA is stopping me from seeking affordable advice about my own DNA.

And I'm upset about that.

I've tried to distract myself with technology and blogging, and even managed to figure out how to stop the spam problem that I was having for quite awhile here at Says Brad. I was contacted by a few blog readers, which is super, as well as an app developer (so I'll be reviewing a new note taking app soon).

I found out that the new iPad Air might have some problems detecting and interacting with pressure-sensitive styluses, and read a bit more about the new iPad mini. I'm now reconsidering it as the superior (personal) choice for all-around use, despite the color accuracy/range issue.

I was going to write about testing blogging platforms such as Roon and Postagon, questions and thoughts that I have about pure blogging options Posthaven and Ghost, as well as testing — and my likely move to — Squarespace 6, but it's been hard to focus on with all of the issues I'm having and becoming aware of concerning the Federal government. I want to make Says Brad purely about design and technology (mostly apps and mobile products), but I haven't had the motivation to do anything about it yet.

Perhaps getting this rant out of the way will help. I know that lack of interest and general depression is a byproduct of chronic pain and the medicines used to treat it, and that awareness is usually accompanied by a resolve to push past it and try to do something — anything...

I really put a lot of hope and faith in my DNA results that now, at least anytime soon, won't be able to get... unless I can find some reliable, affordable expert to help me interpret the raw genetic data that I can still get from 23andMe.

Maybe if enough people out pressure on their Congressman (and women), something can be done about the ridiculously backward, prohibitive, abusive and dictatorial federal government and FDA. I don't think that that will happen, however, unless things get much, much worse. Congress is part of the problem — it's systemic, and it's affecting people. Small businesses, individuals, people with medical problems. I don't want government handouts and help. I want them to get the fuck out of the way.

Well.

Hopefully now I can get back to graphic design and the fun stuff. That is, after I stretch and take a few hour's nap. Word of warning: if your health is good and your body works (at least somewhat) as it should, take care of it and don't take it for granted. Chronic pain and disability is a neverending nightmare.

Before Christmas. Happy holidays. Oh, and don't be offended if you don't like or celebrate Christmas, but someone says Merry Christmas or whatever. Just say thanks. Don't be miserable.

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